Our beautiful daughter Khaleesi is only 4 years old, with her 5th birthday coming up on December 1st. She was born with a complex congenital heart condition called Hypoplastic Left Heart Syndrome (HLHS), a condition that has required multiple open-heart surgeries, endless procedures, and more strength than most could ever imagine.
Despite everything, Khaleesi has faced every battle with the biggest smile and the purest heart. She’s a true Heart Warrior. She dreams of becoming a doctor one day so she can help others, a reflection of the kindness, bravery, and love she’s carried since birth.
Where We Are Now
Today, Khaleesi is fighting for her life. She is currently in severe heart failure and supported by ECMO life support. The medical team will take her into surgery for a Fontan take-down and shunt placement — a final attempt to save her life.
The doctors have told us the chances of her body recovering are only about 10%. If her body cannot sustain this, we will have to face the heartbreaking decision of turning off the machine and letting her pass peacefully.
We are not giving up hope, but we are also preparing for the reality ahead. After years of surgeries, hospital stays, and constant battles, Khaleesi’s body is tired. She has fought harder than any child should ever have to.
How You Can Help
We have decided not to pursue a heart transplant due to the overwhelming risks, long waiting times, and uncertainty of success. Instead, we are focusing on making sure our Princess is surrounded by love, comfort, and dignity no matter what lies ahead.
We are humbly asking for help and prayers as we prepare for what comes next. Your support will help us with:
Continuing Khaleesi’s medical care and comfort needs
End-of-life arrangements if God calls her home
A beautiful service to honor her incredible spirit and journey
No parent should ever have to plan for their child’s final moments, but we want to make sure our baby girl is celebrated the way she deserves, as the strong, loving, and inspiring soul she has always been.
From Her Family
Khaleesi has brought so much love to everyone around her. She’s united our family, inspired her medical team, and shown that even the smallest hearts can have the greatest strength.
Please continue to pray, share, and help in any way you can. Every prayer, message, and donation means the world to us.
From the bottom of our hearts — thank you for loving our little warrior.
With love,
Khaleesi’s Family
